Sunday, November 20, 2011

The Downhill Spiral

There is not much more that I can say, however, we covet your prayers. Kourtney came unglued at school the other day and now we are reaping the repercussions with insomnia and more and more skin breakdown. We are seeking help from the psychologist at Children's. Todd and I are weary as we travel this road - alone and afraid that Kourtney has given up her will to live. School reinforces how different she is and how she is excluded from her peers. The youth group she attends reminds her that her friendships are limited and is very left out from any social interactions.  For heavens sake she can't be on the music team because she did not know you had to try out for them.  Her so called friends tell her to text her and when she does it's instant rejection; "I am busy". "We have to hang out soon"!  Kourtney feels stupid for texting as not once has anyone allowed Kourtney "into their circle"! I can always look on the bright side and be thankful she is not part of the party group, however, when there has been no social interaction for months it becomes very difficult to take! We have been going to the same church for years, but every time we go somebody asks us about Kourtney's hands and then we are left explaining the disease (starts affecting our worship)! We miss our McKnight friends who gave us nothing but unconditional love, and Tammy who loved Kourtney as her own. This is why the psychologist feels that moving to Sask. would be beneficial to our family! Would the snow be whiter on the other side? I am not sure, however, the agony of watching little Kourtney in the depths of despair is not something we as parents could watch much longer! We have a trip to Children's planned for Nov. 22.  We will be seeing endocrinology to see if there are any answers to Kourtneys stunted growth. As well, the psychologist is planning an intervention for Kourtney. We once again ask for prayers; we are depleted!

1 comment:

Peter said...

Hmm.
Very tough to read for me. It's a long and arduous path that we have been dealt and in my experience it's those who are willing to stand by your side with unconditional love and devotion that you have to gravitate to. It's simply so daunting in task and mental fortitude to go it alone. It's early in our battle with EB but those whom have stepped up, have helped in incalculable ways to smooth out our bumps and drops. It seems to me like the answers for you are all there in where your heart is, now it's down to resolve and possibly a tonne of work.
We wish you guys all the best in what is one more of many major crossroads and the incredibly difficult decisions you'll have to make.

If you guys have any extra time and are willing, while at your coming visit to Childrens we'd love to come meet for a bite to eat or whatever - whenever. Note - Ren is gone for two weeks in two weeks.
Raquel, Cordelia, Renata and Ryan.