WE have been sweltering in the BC heat. Fortunately for us 6 years ago we were provided with a central air conditioning system that we we didn't have to pay for, God's hand was evident in all that. Kourtney remains very comfortable during the day and at night despite being wrapped from head to toe with her dressings . We also have a little swimming pool that Shaelyn and Kourtney spend their afternoons in. The sun seems to do wonders for Kourtney's skin.
Our summer also has been consumed with putting new flooring in and yes even more home renos. With the home renos, there is more dust in our house and Kourtney's eyes have been giving her more grief. Fortunately we came across some new medication for her eyes. In the past Kourtney would wake up screaming in the middle of the night my eyes my eyes. We would know that for the next week Kourtney would have to sit in complete darkness and wait until her eyes would heal. In May I took her to our family doctor as her left eye wasn't improving and I was at the end of my rope. Our family doctor wasn't there but another Doctor was on Doctor Peters. He prescribed a new medication for Kourtney, with one drop Kourtney's eyes became less red and she could open her eyes even in bright light.
One night the painful eye condition occured, we put the eye drops in and Kourtney woke up in the morning, her eyes clear and she said....."our God is a God of second chances". Just last week Kourtney woke up and her eyes were irritated, she needed to wear her sunglasses everywhere. I went to put the eye drops in and they were all gone. I phoned our family Doctor and to my dismay he was on holidays, there was no one filling in for him either. The walk-in clinics are useless as Kourtney's condition is rare. I decided to go to Costco and see if we could work out a plan with the pharmacist to get more medication for her eyes. (plus I had run out of my coffee and needed more to get me through the day). The pharmacist that we know well wasn't around and the one there was known to be too helpful with past experience. I decided that we would just have to wait another day and take her to the doctor the next day. As we were paying for the goods at Costco I spotted Dr. Peters (the Doctor who orginally prescribed the medication for Kourtney). He was with his family and was headed towards the food area for hotdogs and fries. We were headed that way also. I didn't want to bug him while he was eating. I prayed, and decided that if he came up to us and said hi I would ask him, otherwise I wasn't going to bug him when he was with his family. Sure enough, he came and said hi. I gave him the empty bottle, explained our dilema, he used his cellphone and called the perscription in to the pharmacist. DONE. Kourtney played in the pool that afternoon, here eyes wide open in the bright sun......It is the small things that we see God's hand in.
Another thing that has been happening, Kourtney has been craving more foods and is eating more. Although the vairety is lacking, she still is managing to eat without her usual choking episodes. I think the best thing we did for her was not to push her and make it something for her to enjoy and do in her own time. We know that the feeding tube was the best thing we could have ever done for her. I don't think that Kourtney would have done so well without it, it has been joyous though for us to watch Kourtney enjoy a grilled cheese happy meal, with a strawberry frutopia, and to see her eat it all up.
Thanks for your continued prayers for our special little girl.
Our summer also has been consumed with putting new flooring in and yes even more home renos. With the home renos, there is more dust in our house and Kourtney's eyes have been giving her more grief. Fortunately we came across some new medication for her eyes. In the past Kourtney would wake up screaming in the middle of the night my eyes my eyes. We would know that for the next week Kourtney would have to sit in complete darkness and wait until her eyes would heal. In May I took her to our family doctor as her left eye wasn't improving and I was at the end of my rope. Our family doctor wasn't there but another Doctor was on Doctor Peters. He prescribed a new medication for Kourtney, with one drop Kourtney's eyes became less red and she could open her eyes even in bright light.
One night the painful eye condition occured, we put the eye drops in and Kourtney woke up in the morning, her eyes clear and she said....."our God is a God of second chances". Just last week Kourtney woke up and her eyes were irritated, she needed to wear her sunglasses everywhere. I went to put the eye drops in and they were all gone. I phoned our family Doctor and to my dismay he was on holidays, there was no one filling in for him either. The walk-in clinics are useless as Kourtney's condition is rare. I decided to go to Costco and see if we could work out a plan with the pharmacist to get more medication for her eyes. (plus I had run out of my coffee and needed more to get me through the day). The pharmacist that we know well wasn't around and the one there was known to be too helpful with past experience. I decided that we would just have to wait another day and take her to the doctor the next day. As we were paying for the goods at Costco I spotted Dr. Peters (the Doctor who orginally prescribed the medication for Kourtney). He was with his family and was headed towards the food area for hotdogs and fries. We were headed that way also. I didn't want to bug him while he was eating. I prayed, and decided that if he came up to us and said hi I would ask him, otherwise I wasn't going to bug him when he was with his family. Sure enough, he came and said hi. I gave him the empty bottle, explained our dilema, he used his cellphone and called the perscription in to the pharmacist. DONE. Kourtney played in the pool that afternoon, here eyes wide open in the bright sun......It is the small things that we see God's hand in.
Another thing that has been happening, Kourtney has been craving more foods and is eating more. Although the vairety is lacking, she still is managing to eat without her usual choking episodes. I think the best thing we did for her was not to push her and make it something for her to enjoy and do in her own time. We know that the feeding tube was the best thing we could have ever done for her. I don't think that Kourtney would have done so well without it, it has been joyous though for us to watch Kourtney enjoy a grilled cheese happy meal, with a strawberry frutopia, and to see her eat it all up.
Thanks for your continued prayers for our special little girl.
