Hi just a quick note to let you know that we have had a great week with Kourtney. She seems to have the sparkle back in her eyes. It is only through your prayers that we get over the humps.
I also have to made a conscious effort to be thankful in every situation. I am so thankful that Kourtney has had 2 full weeks at school without any major concerns. We have even walked to school everyday (Kourtney in her wheelchair). We also sang this weekend in our church sunday school program. I am so thankful for the opportunity to do this as a family. We were also at mom and dad Kujawa's tonight celebrating birthdays and Mothers Day. What a joy to see cousins playing together, giggling and enjoying being together.
I am so thank-ful for all of you who pray diligently for our little family. I think it is so awesome to be able to email and share not only the pain but the joy we encounter as a family.
Tonight Todd, Kourtney and I were talking. Kourtney said, "Will I have EB forvever?" I said, "Yes you will but when you get to heaven you won't." Kourtney responded, "The first thing I will do is ride a tricylcle, then wrestle with you."
Kourtney is starting to acknowledge her feelings about not being able to do things like the other kids. I let her vent but than I have her focus in on the things she can do. Pray for her spirit, that she will not carry bitterness, and pray for Todd and myself as parents that we will learn the best ways for Kourtney to vent her frustrations but not keep focusing on them..
I feel blessed to have you all praying for us.
I also have to made a conscious effort to be thankful in every situation. I am so thankful that Kourtney has had 2 full weeks at school without any major concerns. We have even walked to school everyday (Kourtney in her wheelchair). We also sang this weekend in our church sunday school program. I am so thankful for the opportunity to do this as a family. We were also at mom and dad Kujawa's tonight celebrating birthdays and Mothers Day. What a joy to see cousins playing together, giggling and enjoying being together.
I am so thank-ful for all of you who pray diligently for our little family. I think it is so awesome to be able to email and share not only the pain but the joy we encounter as a family.
Tonight Todd, Kourtney and I were talking. Kourtney said, "Will I have EB forvever?" I said, "Yes you will but when you get to heaven you won't." Kourtney responded, "The first thing I will do is ride a tricylcle, then wrestle with you."
Kourtney is starting to acknowledge her feelings about not being able to do things like the other kids. I let her vent but than I have her focus in on the things she can do. Pray for her spirit, that she will not carry bitterness, and pray for Todd and myself as parents that we will learn the best ways for Kourtney to vent her frustrations but not keep focusing on them..
I feel blessed to have you all praying for us.
