Giggles

Tonight I heard a sound tonight that always makes me smile, Shaelyn and Kourtney giggling. I love hearing the two of them enjoying each other so much. Lately they have even been sleeping together, it is so cool to see the bond of sisterhood so strong!!

On Friday we went to Children's for a "skin check up" this is something that will have to be done biannually due to the high incidence of skin cancer with EB. Although the skin cancer does not develop until the second decade of life, it is very important that skin surveillance starts in the teenage years so that any suspect areas can be monitored.
Over the last few years I could not wrap my head around the logistics of doing a dressing change at Children's. A dressing change has always required a bath to soak the dressing off and the tub room at Chidren's hospital triggers a post traumatic response in both Kourtney and myself. As you remember the last time a Dr  looked at her skin Kourtney's plastic surgeon road his bike out from Vancouver to Abbotsford just to see Kourney's skin.
But over the last six months Kourtney's skin has improved so much that we are able to take Kourtney's dresssings off without a bath.....so we decided that skin surveillance could be done just at the clinic at the hospital. Kourtney seemed to be fine with it but I was very apprehensive not because of the procedure but scared of what they may find. We have been through crisis after crisis after crisis and have had such a lull over the past 6 months that I almost mentally prepared myself to get some bad news ( I didn't share this with anyone-except my bestie:)
On Friday Kourtney was so calm, not one tear or breakdown during the whole dressing off process she was as cool as a cucumber. The dermatologist and nurse were the first ones to walk in and almost did a double take when they saw how amazing Kourtney looked with all of her bandages off. Dr Cautermanche was so pleased with her and always talks to her like she is his only patient in the world. Nothing suspect was found after the scrutiny with Dr Prendivilles' famous magnifying glass. We walked away breathing a huge sigh of relief.
Right now we say life is good. We seize the day! Of course there are things that aren't great but at the moment she is healthy, happy and active, and to me that is the most important.