Kourtney (Koko) was born September 20, 1997 in Abbotsford.  At birth she was diagnosed with a rare skin disorder called Epidermolysis Bullosa. She lived a life of pain, however, it did not stop her from achieving dreams and goals. 

She attended school and graduated from Abbotsford Christian in 2015. She began post secondary education but was unable to complete due to skin cancer which resulted in an amputation of her right hand. 

Still, this didn’t slow her down. 

She loved to travel to USA. Favorite destinations included Hawaii, Colorado and Arizona.  But her most favourite destination was to Disneyland. She visited the happiest place on earth 8 times! Kourtney loved to shop. She kept the Amazon drivers busy! She also scoured bakeries from Chilliwack to Vancouver to find the most delectable grilled cheese or croissant.  Kourtney had such a full summer.  She didn’t let her failing health stop her from enjoying every minute of it.

She loved going to church and apologetic conferences.  Her faith in Jesus was what gave her strength through her very difficult life on earth.  

On September 6th Kourtney fell ill and despite every effort made, her body could no longer keep up with the demands of EB.  After a brave 3 week battle at Abbotsford Hospital, Kourtney passed away 5 days after her 25th birthday.

She was predeceased this year by her Grandpa Dave Kujawa and her dog, Lexi. 

She is survived by her parents Todd and Janelle and sister Shae. Maternal grandparents Harold and Charlene Lutzer. Paternal grandma Bev Kujawa. Numerous aunts, uncles and cousins. Special mention to Uncle Wonderful (Meldon Lutzer) and his wife, Charlotte, cousins Nate, and Clarise (Toby) Funk.

She had numerous caregivers and educational assistants who became family to her. Special mention to Tammy Seppela, Kourtney’s preschool teacher who later became her EA and forever friend.

Also a big thank you to her medical team at BCCH , RCH and most recently ARH. We have nothing but grateful for the care she received . Special mention to Dr. Courtemanche, Dr. Burrill and Dr. Chew. 

Although there is so much sorrow we know she is dancing in heaven. 

In Lieu of flowers donations to DEBRA Canada, a charity committed to supporting people and families who are affected by EB.