Kourtney's Update (Christmas)

I realize this is a Christmas letter, but I couldn’t write without really telling you where my heart is at.

The word discouragement has seemed to plague us this past year. We have battled skin infections, viral infections and blisters in her esophagus that cause extreme pain and an inability to swallow.

In the last six weeks we have had some very serious events happen with Kourtney. Without going into a lot of detail, we have noticed Kourtney’s skin and general physical condition spiral downward. We are unsure why things have changed so much, even since October. We are praying for wisdom and guidance in trying to figure out how we can ease things up a little for her in her daily routine.

In all honesty, I feel like I am fighting a losing battle with her skin. Todd and I feel so helpless when it comes to looking after her. It becomes a vicious battle because Todd and I are stressed, then Kourtney is stressed, she takes it out on her skin and that we get even more stressed.

It is also very difficult to find the balance for Kourtney; her healthy mind is trapped inside an unhealthy body. We can’t let it stop her from being involved with regular 7 year old activities, but yet the damage to her skin is irreversible.,

Kourtney’s spirits can uplift anyone who walks into the house. She seems undaunted by the disease that has invaded her body. Kourtney does not know anything different, but there is not a day that goes by that she expresses her pain. What do you want for Christmas Kourtney? “A new body,” she replies.

Kourtney’s love for music still remains. Watching her lead worship for her peers is truly cute and amazing to see. She is confident and looks forward to the weekends when she sings at church.


Specific Prayer Requests


That Kourtney could have a new body . . . that God would heal her!!!!

For Todd and I . . . patience, peace and protection of our marriage.

We can’t forget Shaelyn either. I know that siblings of special needs children suffer also. Shaelyn has become very needy and expects us to treat her like Kourtney. She also is a very bright light in our family and makes us laugh a lot.

We are also trying to figure out if we will cut back her days of school or hours of school. We think school is too overwhelming for her body but yet the social stimulation is great and provides the opportunity for me to have a bit of a break from Kourtney. Academically Kourtney breezes through all her work.

Pray also that Todd could find a job right in Abbotsford (he commutes 40 minutes each way every day). We would love to have him closer.

We hope that this year you will take our family on in daily prayer as the battle seems more spiritual than anything. We know that God has done great things through Kourtney and will continue to do more, but Satan is a discourager and likes to see us in the pit. We pray for Peace amidst the storm and that we will continue to hold our heads high as we care for Kourtney.

In anticipation of what God is going to do,

The Kujawas