April 9 Update

Dear friends and family,

The 9th of April already. Our trip to disneyland went very well. We had so much fun. Our 3 days at disneyland were long and packed full of activity. Kourtney did very well, we took her on many rides and she tolerated the bumps very well. She absolutely loved the ferris wheel that rocked back and forth while the wheel went around. We were pleased that the trip worked out so well with little or no trauma to Kourtney . . . then we returned home.

Since we have been back we have been battling problems with her eyes. We suspected allergies were the cause of the eye sensitivity, and treated her accordingly. This morning Kourtney began screaming and I knew instantly that her eyes were the source of the problem. All day long Kourtney has not been able to open her eyes. Her R eye must have a scratch on her cornea and even the smallest amount of light causes excruciating pain. We have tried eyedrops, (lubricants and steroids) but nothing seems to calm the pain. The doctors don't have any easy answers and there is not a lot they can do.

We ask that you once again lift up little Kourtney and the rest of our family in prayer. It just rips my heart out when I see her in so much pain and I feel so helpless. We try so hard to manage such a cruel disease and our efforts seem so meaningless when we end up having so many problems with her.

We just have had so may disappointments in the last few weeks. Before we left for Disneyland we had a few disappointing things happen at school, we are still waiting for her esophagus surgery and have been told that cutting back Kourtney's hours of school greatly affects her Teacher's Aid time.

We have had 3 months of calm and once again we are in a crisis situation. Please also pray for our marriage. Todd and I have really been having a rough time with all this. We deal with things so differently and we end up taking a lot of our frustrations out on each other.

We know we can count on you to pray for our family in the next days and weeks to come.


Until next update,

Janelle