Tuesday, March 31, 2009

11 hours later . . .

This morning we left our house for Children's at 0830 for our 10 am appointment with the pshychologist. We did not arrive until 1030 as traffic was so bad and moving very slowly before the bridge. After 25 minutes with the the pshychologist we met up with pain management team and had Kourtney's pain meds adjusted . . . the anaethetist did Kourtney's bloodwork and put an IV in for a possible blood transfusion. Dr. Davis, the hematologist came to see us and told us what his plan for the day was. He told us he would come find us once we got the results from the blood test. So then we went to the dermatology clinic and met with our favourite dermatology nurse, Joanie. Dr. Davis met us there with the great news that although Kourtney's Hemoglobin is still low . . . it is the highest it has been since July of 2008, which means the iron is working. Since the IV was in, he wanted Kourtney to stay to have some more IV iron . . . which made sense. We had one more appointment left and that was with the cast clinic to get Kourtney's cast changed. I could not believe the difference in her her wrist. Before the cast went on a few weeks ago, Kourtney could not lay her right wrist flat with the palm of her hand down. She now has the ability to put her hand flat which will make it functional again. She had not been using it at all. A crowd seemed to gather around Kourtney in the casting clinic and everyone was quite excited about the progress that was made. Dr. Davis, came and found us again to tell us where to meet him. A lot has to be said for a doctor that will come find his patient in three different buildings of the hospital to relay information. Either that or he didn't have much to do that day.

We then went to the inpatient oncology infusion unit so that Kourtney could have her iron. I do believe we have been to all areas of the hospital now. It was just very strange being in the oncology unit. Kourtney was the only child with hair in that area. Unfortunately, the iron could not be given because the pharmacy did not think it was a safe dose for Kourtney to have. YADA YADA YADA . . . 2 hours later the infusion started. Once again Dr. Davis came and stayed in our room and talked to us for at least 1/2 hour and even did some nursing duties. Thank goodness for TV's, beds and recliners in those rooms. We had a nice relaxing afternoon. But by the end, Kourtney, Bev and I were too exhausted for our Ikea trip.

When we finally pulled into the driveway, we were then greeted by about 40 people in our house for pastorate. Kourtney and I are soooooo exhausted but yet have the insight that days like these will be few and far between. It was great having Grandma Bev with us also.

Although slow . . . Kourtney is starting to improve (she is not getting any worse). We accept the gradual improvement and although we just want her to be well, we are thankful that there are encouraging signs that she is getting better.

Kourtney is looking forward to her trip in May and is excited about meeting up with her friend Megan. I really think Kourtney needs this to be her goal to be well.

5 comments:

Tammy said...

Sounds like things are geting better. I am so proud of all of you you are such a STRONG family with all that you have to do . Keep up the great work everyone!!

Lori Bourne said...

Thank you for the update, Janelle. Love & prayers to you. Hope Kourtney continues to get better.

Love,
Lori

JMV Healthcare Garage said...

thanks so much for opening your home up to us after a long day! didn't get a chance to give you a hug. hope you had a restful next day and didn't have to work. thanks for blogging....
m

Megan Barron said...

we need to plan when we are getting together!

Todd, Janis, Paige said...

I told you Dr. Davis was awesome! Those long days at the hospital can take so much out of you. We had our share of 12+ hour days. The drive itself drains you, especially if there's traffic! I'm glad things are looking up for you guys!