The fevers are gone, we are starting to understand her pain response, her skin healed up more than we have seen in over a year, and with the healing comes itch. Kourtney says that she would rather be itchy than in pain. I agree, it is not as gut wrenching to watch her eyes roll back in her head when her back is rubbed, or head is scratched.
Today we got a visit from a doctor who specializes in chronic pain. I don't think we could have met anyone more kind, insightful and full of ideas in assisting Kourtney with her pain. I even got some ideas about the foot pain that has cursed her since July . . . other than Dr. Courtemanche I have never met someone who could give us such practical ideas.
We are so thankful for the gradual improvement in Kourtney, although the crisis is now over, there are still many decisions regarding pain control, education, and getting her into a daily routine. It is so difficult to be patient, as we live in a society that everything is done at the push of a button. It is difficult to be homebound during the Christmas season and want to be part of Christmas.I see and hear of all the Christmas parties, and gatherings that everyone is attending and feel sad that I can't be part of the celebration. But then I am reminded daily by mom and dad, that this "season" we are going through is the true meaning of Christmas. It is having Joy no matter what your circumstances, Joy even in our sufferings.
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