Back from Children's

Shaelyn ended up being home today with a raging fever. Bev took her to the Dr's and he said her throat was very red, he did a swab, we will know the results tomorrow. All of a sudden Kourtney's intense pain was beginning to make sense. We have been so consumed with the MRSA that I forgot that she may have a strep infection.....which she usually gets from someone in our household. We have been struggling with strep infections for years in our household. I have my tonsils out, so Todd and Shaelyn are usually the culprits, but this time I am not sure. If this is what is causing Kourtney's back pain, it would give me some relief knowing that antibiotics would work on this, and would give me an understanding of her intense pain. We will know tomorrow.

So...the plan now with Kourtney is to get her pain under control. We will increase her pain meds and also give her medication to make her forget her dressing change. (She is so distressed to see her skin the way it is and I feel it would help her not to remember her dressing change.) We used this medication during her dressing change in the hospital and although she is very groggy after I think she needs a break from seeing her skin. (I would like to take some also). The medication she is taking is actually the "date rate drug" so it is not easily accessed through a pharmacy. We will have to keep it locked up. The pain doctors also really want to get better supports for Kourtney at home for seating, wheelchair accessibility, etc.

As far as her anemia issues, it will all depend on her bloodwork, which is very difficult to obtain, and then a hematologist will be consulted. We just pray that Kourtney's bone marrrow will kick in and start producing red blood cells....which will make her feel better. 

So.....a few new things to try. As it was explained to us getting her pain under control is first and foremost, and then we can start getting Kourtney back into school, which will help get her mind off of herself also.

I will blog more in a bit. So You Think You Can Dance Canada is on . . . I have to go!!