Still waiting for the blood work results . . . hopefully tomorrow. Although . . . I have to say it is nice living in denial right now. That is why I haven't called for them. It is kind of nice just having the hope that things may be OK. Kourtney had a full day at school today. She was tired but not exhausted.
The baths are so much easier, but now the challenge is being creative with the dressings. I have been doing dressings all of her life but it seems there is not just one simple way . . . I wish someone could just show me, someone who knows . . . like another mom with a child with EB. There is not one dressing that is the best, so really it is just trial and error. So now we continue with the two hours of dressing changes.
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