Long Day

Kourtney woke up around 10 am yesterday. She was miserable and in a lot of pain. I ended up doing her dressings (against the plan), but I knew that they needed to be done because there would have been no way that she would have gotten through the day. Turned out to be a little bit of a disaster.

Although we are seeing signs of improvement, the road to recovery is going to be long. I need a lot of patience. Kourtney and I were very discouraged afterwards. Thanks to Mona for being there and helping Kourtney get through and helping me with the dressings. She is truly a gift to our family.

After all was said and done our dermatologist came in. I sometimes don't know how to take her. I keep hearing that this infection is very hard to get rid of but for some reason it just disappears. She was very encouraging yesterday. It just takes time. I just have to learn how to outsmart it. She is going to look into getting some Apligraft which is a synthetic skin. They have been using it in the USA on kids with EB. She is going to a meeting in Texas and will talk to a doctor there that has used it.

Today my bro will come for a visit. Just pray that Kourtney's back will feel better and she can enjoy the day. She has been on around the clock pain meds last night.

Janelle